Together We Are Stronger
Rare disease fair
Rare Disease Fairs aim to educate, engage, and inspire our community about the importance of rare disease research.Our goal is for all attendees – including a diverse representation of patient advocates, patient organizations, pharma, biotech, government institutions, researchers, legislators, and payers – to better understand how they can help with ending the diagnostic odyssey, improving access to care, and accelerating development of new treatments in the region and beyond.
Seattle
Fair, Payer Forum, Picnic
est. 2017
COLORADO
Fair, Research Day
est. 2025
OKLAHOMA
Fair
est. 2026
NORTH CAROLINA
Payer Forum
est. 2026
Get in touch
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Rare Disease Fairs are organized by the NW Rare Disease Coalition, a non-profit group that supports the Pacific Northwest’s rare disease community through programming, education, and by articulating a bipartisan policy platform to inform and engage legislators. Through direct advocacy, industry partnership, and policy collaboration we focus on ending the diagnostic odyssey, improving access to care, and accelerating development of new treatments in the region and beyond.
© NW Rare Disease Coalition. All rights reserved.
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Colorado
The second annual Colorado Rare Disease Fair and inaugural Rare Disease Research Day will be held on October 12-13, 2026 and will feature action-oriented discussions around the diagnostic odyssey, genetic testing, and gene therapy.Rare Disease Research Day: Monday, October 12, 2026
Rare Disease Fair: Tuesday, October 13, 2026
Children's Hospital of Colorado
Anschutz Medical Campus
Conference Center
13123 East 16th Ave
Aurora, CO 80045Venue Directions:
Children's Hospital Colorado campus map, directions, and parking details are available here.
Timing and Agenda TBD
Support the program
SPONSOR
Interested in supporting our mission to engage and activate the rare disease community? Let's talk.
2025 Fair Partners & Sponsors
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Seattle
The 8th annual Seattle Rare Disease Fair and 3rd annual Rare Disease Payer Forum will be held on March 26-27, 2026 and will feature action-oriented discussions around the diagnostic odyssey, genetic testing, and AI.Payer Forum: Thursday, March 26, 2026
Rare Disease Fair: Friday, March 27, 2026
Community Picnic: More details coming soon!
University of Washington
William F. Foege Genome Sciences Building
Vista Cafe & Foege Auditorium
1500 NE Pacific Street
Seattle, WA 98195Venue Directions:
The Foege Genome Building is located west of the Health Sciences Center.
A full, interactive campus map, including parking and public transit details is available here.
Timing and Agenda TBD
previous speakers & attendees
Testimonials
"The Seattle Children's Rare Fair is one of the best events RDII has participated in over the last two years. This Fair is so well planned and includes incredibly powerful speakers that represent every facet of the rare disease community."
Tara Britt
President and Founder, Rare Disease Innovations Institute (RDII)
Associate Chair, NC Rare Disease Advisory Council
"I was blown away by the support of this global community and firmly believe that these rare stories carry the roadmap to legislative support, services and cures as evidenced by the continual momentum of work for early screening and precision medicine researchers in this field."
Karen Ferguson
Founder, Our Stories Rx
CEO, Discus Analytics
Executive Director, Washington Rheumatology Alliance
Support the program
SPONSOR
Interested in supporting our mission to engage and activate the rare disease community? Let's talk.
2024 Fair Partners & Sponsors
join the rare community
NORTH CAROLINA
We are excited to announce we will be having our inaugural North Carolina Payer Forum in Fall 2026.
More details coming soon!
join the rare community
OKLAHOMA
The inaugural Oklahoma Rare Disease Fair will be held on September 30, 2026, and features action-oriented discussions around the diagnostic odyssey, genetic testing, and gene therapy.
Bethany Children's Health Center - The Children's Center, Inc.
Gray Family Tower
6800 NW 39th Expressway
Bethany, OK 73008Venue Directions:
Bethany Children's Health Center campus map, directions, and parking details are available here.
Timing and Agenda TBD
PAYER FORUM
thursday
June 12
9am-5pm PT
RARE DISEASE FAIR
Colorado
Monday
October 6
8AM - 5:30pm MST
