Together We Are Stronger

Rare disease fair

The 2025 Fair, Payer Forum and Community Picnic aim to educate, engage, and inspire our community about the importance of rare disease research.Our goal is for all attendees – including a diverse representation of patient advocates, patient organizations, pharma, biotech, government institutions, researchers, legislators, and payers – to better understand how they can help with ending the diagnostic odyssey, improving access to care, and accelerating development of new treatments in the region and beyond.

join the rare community

2025 ONLINE + Seattle

Our annual gathering will be held as a hybrid event on June 12-14, 2025

payer forum
thursday
june 12

Timing TBD

A workshop to engage payers in discussions with industry, patients, and legislators around rare disease genetic testing and gene therapy access.

Location TBD

fair
Friday
june 13

8:30am-5:30pm PT

Est. 2017
The annual Rare Disease Fair featuring action-oriented discussions around the diagnostic odyssey, genetic testing, and gene therapy.

Seattle Children's
Building Cure
1920 Terry Ave
Seattle, WA 98101

picnic
Saturday
june 14

Timing TBD

A fun day for patients and their families, including balloons, tattoos, face painting, raffle baskets, music, popcorn, and policy workshops.

Location TBD

Support the program

SPONSOR

Interested in supporting our mission to engage and activate the rare disease community? Let's talk.

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2024 Fair Partners & Sponsors

previous speakers & attendees

Testimonials

"The Seattle Children's Rare Fair is one of the best events RDII has participated in over the last two years. This Fair is so well planned and includes incredibly powerful speakers that represent every facet of the rare disease community."

Tara Britt
President and Founder, Rare Disease Innovations Institute (RDII)
Associate Chair, NC Rare Disease Advisory Council

"I was blown away by the support of this global community and firmly believe that these rare stories carry the roadmap to legislative support, services and cures as evidenced by the continual momentum of work for early screening and precision medicine researchers in this field."

Karen Ferguson
Founder, Our Stories Rx
CEO, Discus Analytics
Executive Director, Washington Rheumatology Alliance

Get in touch

want to stay connected?

The NW Rare Disease Coalition supports the Pacific Northwest’s rare disease community through programming, education, and by articulating a bipartisan policy platform to inform and engage legislators. Through direct advocacy, industry partnership, and policy collaboration we focus on ending the diagnostic odyssey, improving access to care, and accelerating development of new treatments in the region and beyond.