Together We Are Stronger
Rare disease fair
Rare Disease Fairs aim to educate, engage, and inspire our community about the importance of rare disease research.Our goal is for all attendees – including a diverse representation of patient advocates, patient organizations, pharma, biotech, government institutions, researchers, legislators, and payers – to better understand how they can help with ending the diagnostic odyssey, improving access to care, and accelerating development of new treatments in the region and beyond.
Seattle
Fair, Payer Forum, Picnic
est. 2017
COLORADO
Fair, Research Day
est. 2025
OKLAHOMA
Fair
est. 2026
NORTH CAROLINA
Payer Forum
est. 2026
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Rare Disease Fairs are organized by the NW Rare Disease Coalition, a non-profit group that supports the Pacific Northwest’s rare disease community through programming, education, and by articulating a bipartisan policy platform to inform and engage legislators. Through direct advocacy, industry partnership, and policy collaboration we focus on ending the diagnostic odyssey, improving access to care, and accelerating development of new treatments in the region and beyond.
© NW Rare Disease Coalition. All rights reserved.
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Colorado
The second annual Colorado Rare Disease Fair and inaugural Rare Disease Research Day will be held on October 12-13, 2026 and will feature action-oriented discussions around the diagnostic odyssey, genetic testing, and gene therapy.Rare Disease Research Day: Monday, October 12, 2026
Rare Disease Fair: Tuesday, October 13, 2026
Children's Hospital of Colorado
Anschutz Medical Campus
Conference Center
13123 East 16th Ave
Aurora, CO 80045Venue Directions:
Children's Hospital Colorado campus map, directions, and parking details are available here.
Timing and Agenda TBD
Support the program
SPONSOR
Interested in supporting our mission to engage and activate the rare disease community? Let's talk.
2026 Fair Partners & Sponsors
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Seattle
Thank you to those who joined the 8th annual Seattle Rare Disease Fair and 3rd annual Rare Disease Payer Forum held on March 26-27, 2026 which featured action-oriented discussions around the diagnostic odyssey, genetic testing, and AI.
University of Washington School of Medicine
William H Foege Genome Sciences Building
3720 15th Ave NE Seattle WA 98195The Foege Genome Sciences Building is located at the corner of 15th Avenue NE and NE Boat Street.
Upon arrival, please use the glass doors at the South end of the building for entrance.
A full, interactive campus map, including parking and public transit details is available here.
previous speakers & attendees
Testimonials
"The Seattle Children's Rare Fair is one of the best events RDII has participated in over the last two years. This Fair is so well planned and includes incredibly powerful speakers that represent every facet of the rare disease community."
Tara Britt
President and Founder, Rare Disease Innovations Institute (RDII)
Associate Chair, NC Rare Disease Advisory Council
"I was blown away by the support of this global community and firmly believe that these rare stories carry the roadmap to legislative support, services and cures as evidenced by the continual momentum of work for early screening and precision medicine researchers in this field."
Karen Ferguson
Founder, Our Stories Rx
CEO, Discus Analytics
Executive Director, Washington Rheumatology Alliance
Support the program
SPONSOR
Interested in supporting our mission to engage and activate the rare disease community? Let's talk.
2026 Fair Partners & Sponsors
join the rare community
NORTH CAROLINA
The inaugural North Carolina Events will feature action-oriented discussions around the diagnostic odyssey, genetic testing, and gene therapy.Payer Forum and Rare Disease Fair: TBD (Rescheduled)Blue Hill Event Center
200 South Elliott Road
Chapel Hill, NC 27514Venue Details:
Located in Chapel Hill, NC, this venue is a short drive from both UNC and Duke campuses. Blue Hill Event Center has ample free parking on-site and in the parking deck across the street on Elliott Road.
Timing and agenda TBD
Registration link coming soon!
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OKLAHOMA
The inaugural Oklahoma Rare Disease Fair will be held on September 30, 2026, and features action-oriented discussions around the diagnostic odyssey, genetic testing, and gene therapy.
Bethany Children's Health Center - The Children's Center, Inc.
Gray Family Tower
6800 NW 39th Expressway
Bethany, OK 73008Venue Directions:
Bethany Children's Health Center campus map, directions, and parking details are available here.
Timing and Agenda TBD
PAYER FORUM
Seattle
thursday
March 26
9:00am - 5:15pm PT
RARE DISEASE FAIR
Seattle
friday
march 27
9:00am - 5:15pm PT
