Together We Are Stronger
Rare disease fair
Rare Disease Fairs aim to educate, engage, and inspire our community about the importance of rare disease research.Our goal is for all attendees – including a diverse representation of patient advocates, patient organizations, pharma, biotech, government institutions, researchers, legislators, and payers – to better understand how they can help with ending the diagnostic odyssey, improving access to care, and accelerating development of new treatments in the region and beyond.
Seattle
Fair, Payer Forum, Picnic
est. 2017
COLORADO
Fair, Research Day
est. 2025
OKLAHOMA
Fair
est. 2026
NORTH CAROLINA
Payer Forum, Fair
est. 2027
TEXAS
Fair
est. 2027
CALIFORNIA
Fair
est. 2027
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Rare Disease Fairs are organized by the NW Rare Disease Coalition, a non-profit group that supports the Pacific Northwest’s rare disease community through programming, education, and by articulating a bipartisan policy platform to inform and engage legislators. Through direct advocacy, industry partnership, and policy collaboration we focus on ending the diagnostic odyssey, improving access to care, and accelerating development of new treatments in the region and beyond.
© NW Rare Disease Coalition. All rights reserved.
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Colorado
The second annual Colorado Rare Disease Fair and inaugural Rare Disease Research Day will be held on October 12-13, 2026 and will feature action-oriented discussions around the diagnostic odyssey, genetic testing, and gene therapy.Rare Disease Research Day: Monday, October 12, 2026
Rare Disease Fair: Tuesday, October 13, 2026
Children's Hospital of Colorado
Anschutz Medical Campus
Conference Center
13123 East 16th Ave
Aurora, CO 80045Venue Directions:
Children's Hospital Colorado campus map, directions, and parking details are available here.
Support the program
SPONSOR
Interested in supporting our mission to engage and activate the rare disease community? Let's talk.
2026 Fair Partners & Sponsors
Together We Are Stronger
Rare disease fair
Support the program
SPONSOR
Interested in supporting our mission to engage and activate the rare disease community? Let's talk.
2026 Fair Partners & Sponsors
join the rare community
Seattle
The 10th annual Seattle Rare Disease Fair will be held on June 3, 2027. Additional details coming soon!Date: Thursday, June 3, 2027Time: 9:00 AM to 5:00 PMUniversity of Washington
HUB 145
Registration link coming soon!
previous speakers & attendees
Testimonials
"The Seattle Children's Rare Fair is one of the best events RDII has participated in over the last two years. This Fair is so well planned and includes incredibly powerful speakers that represent every facet of the rare disease community."
Tara Britt
President and Founder, Rare Disease Innovations Institute (RDII)
Associate Chair, NC Rare Disease Advisory Council
"I was blown away by the support of this global community and firmly believe that these rare stories carry the roadmap to legislative support, services and cures as evidenced by the continual momentum of work for early screening and precision medicine researchers in this field."
Karen Ferguson
Founder, Our Stories Rx
CEO, Discus Analytics
Executive Director, Washington Rheumatology Alliance
Support the program
SPONSOR
Interested in supporting our mission to engage and activate the rare disease community? Let's talk.
2026 Fair Partners & Sponsors
join the rare community
NORTH CAROLINA
The inaugural North Carolina Rare Disease Fair and Payer Forum will be held May 6-7, 2027 and feature action-oriented discussions around the diagnostic odyssey, genetic testing, and gene therapy.Payer Forum: May 6, 2027
Rare Disease Fair: May 7, 2027The Conference Center at NC Biotech
15 T.W. Alexander Drive
Durham, North Carolina 27713
Timing and agenda TBD
Registration link coming soon!
Support the program
SPONSOR
Interested in supporting our mission to engage and activate the rare disease community? Let's talk.
2026 Seattle Fair Partners & Sponsors
join the rare community
CALIFORNIA
The inaugural California Rare Disease Fair will be held on September 10, 2027, and features action-oriented discussions around the diagnostic odyssey, genetic testing, and gene therapy.Date: Friday, September 10, 2027LKSC
Stanford University
Registration link coming soon!
Support the program
SPONSOR
Interested in supporting our mission to engage and activate the rare disease community? Let's talk.
2026 Seattle Fair Partners & Sponsors
join the rare community
TEXAS
The inaugural Texas Rare Disease Fair will be held on April 19, 2027, and features action-oriented discussions around the diagnostic odyssey, genetic testing, and gene therapy.
Thompson Conference Center
The University of Texas at Austin
2405 Robert Dedman Drive
Austin, TX 78712
Venue Directions:
Thompson Conference Center location, directions, and parking details are available here.
Timing and Agenda TBD
Support the program
SPONSOR
Interested in supporting our mission to engage and activate the rare disease community? Let's talk.
2026 Fair Partners & Sponsors
join the rare community
OKLAHOMA
The inaugural Oklahoma Rare Disease Fair will be held on September 30, 2026, and features action-oriented discussions around the diagnostic odyssey, genetic testing, and gene therapy.
Bethany Children's Health Center - The Children's Center, Inc.
Gray Family Tower
6800 NW 39th Expressway
Bethany, OK 73008Venue Directions:
Bethany Children's Health Center campus map, directions, and parking details are available here.
Support the program
SPONSOR
Interested in supporting our mission to engage and activate the rare disease community? Let's talk.
2026 Fair Partners & Sponsors
PAYER FORUM
Seattle
thursday
March 26
9:00am - 5:15pm PT
RARE DISEASE FAIR
Oklahoma
wednesday
september 30
9:00am - 6:00pm CT
RARE DISEASE FAIR
Seattle
friday
march 27
9:00am - 5:15pm PT
Colorado 2026
Agendas
SPEAKER BIOS
Colorado 2026
SPEAKER BIOS
